Hear from the experts

Claire Wiley, the Director of Data Systems & Program Evaluation at The Door (a holistic youth services non-profit agency in New York City) highlights three key principles non-profit organizations must consider when it comes to maintaining data security and privacy for their organizations and program participants: compliance, ethics, and trust.

For Dr. Osagie Obasogie, Haas Distinguished Chair and Professor of Bioethics in the UC Berkeley – UCSF Joint Medical Program and the UC Berkeley School of Public Health, ethical data collection and representation begins with a commitment to ascertaining what’s happening in people’s lives and focusing less on the individual project he’s working on

The demand for large data sets that indicate progress or project success is often accompanied by requests for several individual success stories that clearly demonstrate the impact of donor funding on an individual’s trajectory. While data can provide important insights into successful strategies for funding, it can also misrepresent the experiences and needs of the target beneficiaries.